Mind & Body

Influencer Who Candidly Documented Her Battle With Cystic Fibrosis on Instagram Dies at Age 21



One week after receiving her newly transplanted lungs, Claire Wineland took her final breath. The YouTube star, who was diagnosed with cystic fibrosis at birth, died Sunday night at the age of 21.

It was announced Monday that Claire suffered a massive stroke on Aug 26 after the nine-hour transplant surgery. The inspirational star’s family made the decision to take her off life support.

“[Claire] was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed,” Wineland’s foundation, Claire’s Place, confirmed on Facebook Monday. “Her mother Melissa Yeager and father John Wineland saw her into this world for her first breath and were with her for her last.”

“After a week of intensive care and various life-saving procedures, it became clear that it was Claire’s time to go,” her family shared. “In Claire fashion, she is an organ donor. Claire’s remarkable family were so happy for the other families that were now getting the calls that the organ they had long been waiting for was now available for transplant.”

On Monday, Claire’s doctors told her mother that she saved the lives of two people.

“Claire was able to save the life of two people, her right kidney was transplanted to a 44-year-old woman in San Diego, and her left kidney was transplanted to a 55-year-old male in Northern California,” Yeager told CNN. “Also, Claire’s corneas and tissue was recovered and she will be able to enhance the life of up to 50 people.”

Wineland frequently shared her battle with cystic fibrosis, a life-threatening and rare disorder that causes the cells that produce sweat and mucus to becomes thicker in organs such as the lungs, according to the Cystic Fibrosis Foundation.

From posting photos of her treatments from the hospital to giving inspirational speeches, Wineland worked to help others with the same genetic disease.

In late May, Wineland excitedly told fans and followers that she made the transplant list. And on Aug. 26, she tweeted photos from a hospital in San Diego, California, when she heard the good news about her lung transplant surgery.

“OMG!! Got THE CALL for lungs at 5:30am! Waiting at UCSD to make sure they are a go..if so, I could have new lungs TODAY!!” she wrote along with a photo of her family and friends. “It’s a GO!!! Surgeon said they are perfect!! See y’all on the other side.”

And in July 2017, Wineland gave an inspirational TEDx talk about her illness.

“Life isn’t just about being happy,” she said. “It’s not about how you feel second to second,” she said. “It’s about what you’re making of your life and whether you can find a deep pride in who you are and what you’ve given.”

In 2010, when she was 13, she created her foundation after coming out of a 16-day medically induced coma.

In addition to her platform on social media, Wineland received several honors including a Teen Choice award in 2015 and among Seventeen magazine’s “17 Power Teens” of 2016.





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